Inclusion from the Perspective of Pupils with Autism

Jasmina Stošić

Abstract


The concept of inclusion remains a topic of many discussions between professionals and researchers. At the same time, many children with autism are included in mainstream school with their neurotypical peers. Research has shown that many children with autism are socially excluded in mainstream schools. This review paper aims to explore the perspective of pupils with autism on inclusive education. The main results were grouped by the following themes: relationship with peers, relationship with teachers, environment and sensory issues, interests, and what children need in mainstream schools. This narrative review has shown that from the perspective of pupils with autism educational inclusion is still not achieved.

Keywords


autism; inclusion; peers; sensory stimuli; interests; teachers

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References


American Psychiatric Association [APA] (2013), Diagnostic and statistical manual of mental disorders (5th ed.), American Psychiatric Publishing, Arlington

Bogdashina, Olga (2016), Sensory Perceptual Issues in Autism and Asperger Syndrome, Second Edition: Different Sensory Experiences - Different Perceptual Worlds, Jessica Kingsley Publishers, London

Bölte, Sven (2019), ˝Hey autism researcher, what’s on your mind today about inclusion?˝ Autism, 23(7), 1611-1613.

Brede, Janina, Anna Remington, Lorcan Kenny (2017), ˝Excluded from school: examining the educational experiences of students on the autism spectrum˝, Autism & Developmental Language Impairments, 2, 1-20.

Bukvić, Zlatko (2014), ˝Teachers competency for inclusive education˝, European Journal of Social and Behavioural Sciences, 11(4), 1585-1590.

Bury, Simon M., Rachel Jellett, Jennifer R. Spoor, Darren Hedley (2020), ˝It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?˝, Journal of Autism and Developmental Disorders, 1-11.

Carrington, Suzanne, Lorraine Graham (2001), ˝Perceptions of school by two teenage boys with Asperger syndrome and their mothers: a qualitative study˝, Autism, 5(1), 37-47.

Carrington, Suzanne, Elizabeth Templeton, Tracey Papinczak (2003), ˝Adolescents with Asperger syndrome and perceptions of friendship˝, Focus on Autism and Other Developmental Disabilities, 18(4), 211-218.

Cassidy, Sarah, Louise Bradley, Rebecca Shaw, Simon Baron-Cohen (2018), ˝Risk markers for suicidality in autistic adults˝, Molecular Autism, 9(1), 42-53.

Cassidy, Sarah, Peter Mitchell, Peter Chapman, Danielle Ropar (2015), ˝Processing of spontaneous emotional responses in adolescents and adults with autism spectrum disorders: Effect of stimulus type˝, Autism Research, 8(5), 534-544.

Chamberlain, Brandt, Connie Kasari, Erin Rotheram-Fuller (2007), ˝Involvement or isolation? The social networks of children with autism in regular classrooms˝, Journal of Autism and Developmental Disorders, 37(2), 230-242

Crompton Catherine J., Danielle Ropar, Claire V. M. Evans-Williams, Emma G. Flynn, Sue Fletcher-Watson (2019), ˝Autistic peer-to-peer information transfer is highly effective˝, Autism, 24(7), 1704-1712.

Department for Education (2010), Children with special educational needs: An analysis, DFE Publications, Nottingham

Eguiguren Istuany, Olivia, Rebecca Wood (2020), ˝Perspectives on Educational Inclusion from a Small Sample of Autistic Pupils in Santiago, Chile˝, Scandinavian Journal of Disability Research, 22(1), 210-220.

Falkmer, Marita, Mats Granlund, Claes Nilholm, Torbjörn Falkmer (2012), ˝From my perspective – Perceived participation in mainstream schools in students with autism spectrum conditions˝, Developmental Neurorehabilitation, 15(3), 191-201.

Goodall, Craig (2018), ˝I felt closed in and like I couldn’t breathe’: A qualitative study exploring the mainstream educational experiences of autistic young people˝, Autism & Developmental Language Impairments, 1, 1-16.

Gunn, Kerry, Jonathan Delafield-Butt (2016), ˝Teaching children with autism spectrum disorder with restricted interests: A review of evidence for best practice˝, Review of Educational Research, 86(2), 408-430.

Hebron, Judith, Neil Humphrey (2014), ˝Mental health difficulties among young people on the autistic spectrum in mainstream secondary schools: A comparative study˝, Journal of Research in Special Educational Needs, 14(1), 22-32.

Hull, Laura, William Mandy, Meng-Chuan Lai, Simon Baron-Cohen, Carrie Allison, Paula Smith, K. V. Petrides (2019), ˝Development and validation of the camouflaging autistic traits questionnaire (CAT-Q)˝, Journal of Autism and Developmental Disorders, 49, 819-833.

Hull, Laura, K. V. Petrides, Carrie Allison, Paula Smith, Simon Baron-Cohen, Meng-Chuan Lai, William Mandy (2017), ˝Putting on my best normal”: Social camouflaging in adults with autism spectrum conditions”, Journal of Autism and Developmental Disorders, 47, 2519-2534.

Humphrey, Neil, Judith Hebron (2015), ˝Bullying of children and adolescents with autism spectrum conditions: a ‘state of the art review˝, International Journal of Inclusive Education, 19(8), 845-862.

Humphrey, Neil, Sarah Lewis (2008), ˝Make me normal’: The views and experiences of pupils on the autistic spectrum in mainstream secondary schools˝, Autism, 12(1), 23-46.

Humphrey, Neil, Sarah Lewis (2008a), ˝What does ‘inclusion’ mean for pupils on the autistic spectrum in mainstream secondary schools?˝, Journal of Research in Special Educational Needs, 8(3), 132-140.

Humphrey, Neil, Wendy Symes (2010), ˝Perceptions of social support and experience of bullying among pupils with autistic spectrum disorders in mainstream secondary schools˝, European Journal of Special Needs Education, 25(1), 77-91.

Imray, Peter, Andrew Coley (2017), Inclusion is dead-long live inclusion, Routledge, London

Kapp, Steven K., Kristen Gillespie-Lynch, Lauren E. Sherman, Ted Hutman (2013), ˝Deficit, difference, or both? Autism and neurodiversity˝, Developmental Psychology, 49(1), 59-71.

Kasari, Connie, Jill Locke, Amanda Gulsrud, Erin Rotheram-Fuller (2011), ˝Social networks and friendships at school: comparing children with and without ASD˝, Journal of Autism and Developmental Disorders, 41(5), 533-544.

Kaufman, James M. (2020), On educational inclusion: Meanings, history, issues and international perspectives, Routledge, London

Kenny, Lorcan, Caroline Hattersley, Bonnie Molins, Carole Buckley, Carol Povey, Elizabeth Pellicano (2016), ˝Which terms should be used to describe autism? Perspectives from the UK autism community˝, Autism, 20(4), 442-462.

Liasidau, Anastazia (2012), Inclusive Education, Politics and Policymaking (Contemporary Issues in Education Studies), 1st Edition, Continuum

Lisak Šegota, Natalija, Ivana Lessner Lištiaková, Jasmina Stošić, Joanna Kossewska, Jasmina Troshanska, Ana Petkovska Nikolovska, Tamara Cierpiełowska, David Preece (2020), ˝Teacher education and confidence regarding autism of specialist primary school teachers˝, European Journal of Special Needs Education, online first, 1-14. Dostupno na: https://www.tandfon line.com/doi/full/10.1080/08856257.2020.1829865

Macmillan, Katherine, Craig Goodall, Sue Fletcher-Watson (2018), ˝Do autistic individuals experience understanding in school?˝, OEfF reprints, 1-20.

Marshall, David, Craig Goodall (2015), ˝The right to appropriate and meaningful education for children with ASD˝, Journal of Autism and Developmental Disorders, 45(10), 3159-3167.

McGregor, Evelyn, Elaine Campbell (2001), ˝The Attitudes of Teachers in Scotland to the Integration of Children with Autism into Mainstream Schools˝, Autism, 5(2), 189-207.

Merry, Michael S. (2020), ˝Do Inclusion Policies Deliver Educational Justice for Children with Autism? An Ethical Analysis˝, Journal of School Choice, 14, 9-25.

Mitchell, Peter, Elizabeth Sheppard, Sarah Cassidy (2021), ˝Autism and the double empathy problem: Implications for development and mental health˝, British Journal of Developmental Psychology, 39, 1-18.

Morewood, Gareth, Neil Humphrey, Wendy Symes (2011), ˝Mainstreaming autism: Making it work˝, Good Autism Practice, 12(2), 62-68.

Murray, Dinah (2018), ˝Monotropism: An interest-based account of autism˝, u: Fred Volkmar (ur.), Encyclopedia of Autism Spectrum Disorders, Springer, New York

Myles, Olivia, Christopher Boyle, Andrew Richards (2019), ˝The social experiences and sense of belonging in adolescent females with Autism in mainstream school˝, Educational and Child Psychology, 36(4), 8-21.

Parsons, Sarah (2015), ˝‘Why are we an ignored group?’ Mainstream educational experiences and current life satisfaction of adults on the autism spectrum from an online survey˝, International Journal of Inclusive Education, 19, 397-421.

Pellicano, Elizabeth, Adam Dinsmore, Tony Charman, (2014), ˝What should autism research focus upon? Community views and priorities from the United Kingdom˝, Autism, 18(7), 756-770.

Pellicano, Liz, Sven Bölte, Aubyn Stahmer (2018), ˝The current illusion of educational inclusion˝, Autism, 22(4), 386-387.

Ralph, Sue, Julie Marshall, Sue Palmer (2002),˝“I Wasn’t Trained to Work with Them”: Mainstream Teachers’ Attitudes to Children with Speech and Language Difficulties˝, International Journal of Inclusive Education, 6, 199-215.

Robertson, Kristen, Brandt Chamberlain, Connie Kasari (2003),˝General Education Teachers’ Relationships with Included Students with Autism˝, Journal of Autism and Developmental Disorders, 33, 123-130.

Roche, Laura, Dawn Adams, Megan Clark (2020), ˝Research priorities of the autism community: A systematic review of key stakeholder perspectives˝, Autism, 25(2), 336-348.

Rowley, Emma, Susie Chandler, Gillian Baird, Emily Simonoff, Andrew Pickles, Tom Loucas, Tony Charman (2012), ˝The experience of friendship, victimization and bullying in children with an autism spectrum disorder: Associations with child characteristics and school placement˝, Research in Autism Spectrum Disorders, 6(3), 1126-1134.

Schroeder, Jessica H., M. Catherine Cappadocia, James M. Bebko, Debra J. Pepler, Jonathan A. Weiss (2014), ˝Shedding light on a pervasive problem: a review of research on bullying experiences among children with autism spectrum disorders˝, Journal of Autism and Developmental Disorders, 44(7), 520-534.

Sciutto, Mark, Sally Richwine, Janelle Mentrikoski, Kathryn Niedzwiecki (2012), ˝A qualitative analysis of school experience of students with autism spectrum disorders˝, Focus on Autism and Other Developmental Disabilities, 27, 177-188.

Sekušak-Galešev, Snježana, Jasmina Frey Škrinjar, Lea Masnjak (2015), Examining social inclusion and quality of support in preschool, elementary and secondary educational institutions for children and students with Autism Spectrum Disorder (ASD) and Attention Deficit Hyperactivity Disorder (ADHD), Faculty of Education and Rehabilitation Sciences University of Zagreb, Zagreb

Sheppard, Elizabeth, Dhanya Pillai, Genevieve Tze-Lynn Wong, Danielle Ropar, Peter Mitchell (2016), ˝How easy is it to read the minds of people with Autism Spectrum Disorder?˝, Journal of Autism and Developmental Disorders, 46, 1247-1254.

Sinclair, Jim (2010), ˝Being autistic together˝, Disability Studies Quarterly, 30(1), 24-39.

Sofronoff, Kate, Elizabeth Dark, Valerie Stone (2011), ˝Social vulnerability and bullying in children with Asperger syndrome˝, Autism, 15(3), 355-372.

Sproston, Kelda, Felicity Sedgewick, Laura Crane (2017), ˝Autistic girls and school exclusion: Perspectives of students and their parents˝, Autism and Developmental Language Impairments, 2, 1-14.

Starczewska, Ania, Alan Hodkinson, Gill Adams (2011), ˝Conceptions of inclusion and inclusive education: A critical examination of the perspectives and practices of teachers in Poland˝, Journal of Research in Special Educational Needs, 12(3), 162-169.

Terzi, Lorella (2005), ˝Beyond the Dilemma of Difference: The Capability Approach to Disability and Special Educational Needs˝, Journal of Philosophy of Education, 39, 443-459.

Trajkovski, Vladimir (2017), ˝Macedonia and Autism˝, u: Fred Volkmar (ur.), Encyclopedia of Autism Spectrum Disorders, Springer, New York

Van den Bosch, Karin E., Anna Krzeminska, Eun Young Song, Lineke B. E. Van Hal, Mitzi M. Waltz, Hannah Ebben, Alice P. Schippers (2018), ˝Nothing about us, without us: A case study of a consumer-run organization by and for people on the autism spectrum in the Netherlands˝, Journal of Management & Organization, 25(4), 464-480.

Williams, Emma I., Kate Gleeson, Bridget E. Jones (2019), ˝How pupils on the autism spectrum make sense of themselves in the context of their experiences in a mainstream school setting: A qualitative metasynthesis˝, Autism, 23(1), 8-28.

Wood, Rebecca (2018), The inclusion of autistic children in the curriculum and assessment in mainstream primary schools, doctoral thesis, Education College of Social Sciences University of Birmingham, Birmingham

Wood, Rebecca (2019), ˝Autism, intense interests and support in school: from wasted efforts to shared understandings˝, Educational Review, 73, 1-21.




DOI: https://doi.org/10.51558/2490-3647.2021.6.4.493

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